At the Roots: Natural Healing for Cystic Fibrosis
  • Blog
  • Cystic Fibrosis
    • Inflammation and Infection
    • Brochiectasis and Inflammation
    • The Microbiome: Your Gut and Immunity
    • Carbohydrates, Gut Flora, and Leaky Gut Syndrome
    • CF-Related Diabetes and Impaired Glucose Tolerance
  • Nutrition
    • Food Rules
    • How to Buy Food
    • What to Eat >
      • Carbohydrates >
        • Sugars
        • Grains and Starches
        • Fruits
      • Fats
      • Proteins
    • Healing Foods >
      • The Five Flavors
      • Medicinal Vegetables
      • Medicinal Fruits
    • Nutritional Supplements
    • Herbs for CF
    • Natural and Complementary Medicine
  • Resources
  • About/Contact
  • Consultation

Trikafta, Kidney Stones, and Other Updates

9/23/2020

1 Comment

 
PictureLook at my pretty garden!
It's been a long time since I've written something here. The focus of my life has shifted towards writing novels instead of updating this blog, so I apologize if it's been silent around these parts. There's a lot to say, but I'll keep it to just the main points.

Trikafta
I've been on Trikafta for about 11 months now. It has radically changed my life. I am not "done" with CF, but I feel closer to being "cured" of this affliction than I ever thought possible. My gratitude to those who developed this drug is vast and inexpressible. I may live several decades longer. The price tag is unreasonable (about 30 times more than I make in a year) but thank the gods my insurance pays for it! I fervently hope that all qualifying CFers everywhere in the world can gain access to this drug. I do less than half of the breathing treatments I used to and my lung function has gone up about 10%. I no longer rely on antibiotics anymore - I've only had them twice since starting Trikafta (once using IV antibiotics during the "flu-like thing" described below, and once with oral abx in May). I have a taste of what it feels like to be "normal"!


Read More
1 Comment

    Author

    Mica is a clinical herbalist specializing in cystic fibrosis, severe respiratory diseases, nutrition and digestion, diabetes and blood sugar disregulation, and immune disregulation. Through their own personal experiences with chronic illness, they are passionate about empowering people to take charge of their own health with natural, holistic, and integrative approaches. Please ask questions or share what's worked for you! 

    *****************************
    Disclaimer: The content of this website and blog is for educational purposes only and should not be considered medical advice. I am not a licensed medical professional and do not take responsibility for any actions taken by the reader as a result of access to this information. 
    ​*****************************

    Follow me on Facebook:
    ***********************
    Donate to keep 
    this work going:


    Categories

    All
    Chinese Medicine
    Cold And Flu
    Diabetes/Blood Sugar
    Digestion
    Essential Oils
    Experimental Drugs
    Food And Nutrition
    Food Combining
    Gaps Diet
    Gluten
    Gut Dysbiosis
    Hemoptysis
    Herbs
    Lifestyle/ Quality Of Life
    Lung Disease
    Natural Medicine
    Our Microbiomes
    Presentations
    Recipes
    Sinuses
    Specific Carbohydrate Diet
    Stomach Acid/ GERD

    Archives

    December 2020
    September 2020
    March 2020
    December 2019
    July 2019
    March 2019
    February 2019
    December 2018
    October 2018
    May 2018
    January 2018
    May 2017
    April 2017
    November 2016
    October 2016
    July 2016
    June 2016
    April 2016
    March 2016
    February 2016
    January 2016
    October 2015
    August 2015
    April 2015
    February 2015
    December 2014
    September 2014
    August 2014
    July 2014
    June 2014
    April 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    June 2013
    May 2013
    April 2013

    RSS Feed

Powered by Create your own unique website with customizable templates.